The PD-Ballet study: a randomised controlled, single-blinded trial of dance therapy for Parkinson’s, baseline characteristics of the study cohort
Objective: To describe baseline characteristics of the cohort of participants recruited to a world-first randomised controlled single blind trial of ballet-based dance intervention for holistic…Use and Misuse of the Unified Multiple System Atrophy Rating Scale
Objective: To quantify the use and variation of the motor part of Unified Multiple System Rating Scale (UMSARS II) on prospectively planned studies. Background: Despite…Effect of the COVID-19 pandemic on gait and other motor and non-motor symptoms in people with Parkinson’s disease
Objective: To determine if the COVID-19 pandemic significantly impacted disease progression in people with Parkinson's disease (PwPD) Background: Few cross sectional and short-term longitudinal studies…PD-PROP reporting in participants own words shows high burden of cognitive symptoms in early Parkinson Disease (PD)
Objective: Describe the relative frequency of bothersome cognitive symptoms reported verbatim by people with PD in the Fox Insight online study. Background: Cognitive decline is…Development and preliminary results of a new picture-based self-rating tool for neuropsychiatric syndromes in Parkinson’s disease
Objective: To develop a picture-based, non-verbal screening tool to detect neuropsychiatric syndromes (NPS), including depression, anxiety, apathy, fatigue, mania, impulse control disorder (ICD), sleeping problems,…Inferring Rigidity Scores in MDS-UPDRS Motor Assessment from Other Items
Objective: This study aimed to explore the possibility of inferring rigidity scores in MDS-UPDRS assessments from other items to enhance the accuracy of clinical evaluations…Loneliness, Self-Efficacy, and Resilience: Neglected Modifiable Contributors to Parkinson’s Disease Symptom Severity and Quality of Life
Objective: To evaluate the degree to which modifiable psychosocial (PS) variables including loneliness, self-efficacy (SE) and resilience explain the variance observed in Parkinson’s disease (PD)…Understanding patient perceptions of the key components of Medication Adherence in PD: a multicenter, international study
Objective: To understand how patients with Parkinson's disease (PD) and their care partners describe medication adherence. Background: Medication adherence in is a complex construct, associated…Huntington’s Disease, Cognition, and Fear of Falling
Objective: Explore the relationship of cognition and patient-reported assessment on fear of falling in people with Huntington’s Disease. Background: Huntington’s Disease (HD) is a relentlessly…Time-to-event approach mitigates the treatment masking effect of symptomatics on MDS-UPDRS Part III
Objective: To assess whether a time-to-event (TTE) approach may mitigate the masking effect of changing symptomatic therapy on Movement Disorders Society–Unified Parkinson’s Disease (PD) Rating…
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