Reliability of the severity subscale of the Toronto Western Spasmodic Torticollis Rating Scale in a multidisciplinary team
Objective: To assess the inter-rater reliability of the severity subscale of the Toronto Western Spasmodic Torticollis Rating Scale (TWSTRS) in a multidisciplinary team. Background: The…Living with Parkinson’s disease scale: First validation study among English-speaking population
Objective: To analyse the psychometric properties of the English version of the Living with long term conditions (LwLTCs) scale in people living with Parkinson’s disease…A baseline study for the first year of a diverse Parkinson’s Disease interdisciplinary clinic
Objective: To characterize patients at a new diverse, academic Parkinson’s Disease (PD) interdisciplinary clinic (IDC). Background: PD affects patients in nearly all spheres of life,…Progression of the Clinical Features of Progressive Supranuclear Palsy-Richardson Syndrome in Early and Advanced Stages
Objective: We sought to evaluate PSP-Richardson syndrome (PSP-RS) for uniformity of progression over nearly the entire disease course. Rather than comparing scores to the simple…Predicting ALS progression using remote sensor-based assessments
Objective: To develop a predictive model of amyotrophic lateral sclerosis (ALS) progression using self-administered digital assessments. Background: Remote fit-for-purpose sensor-based assessments stand to enhance the…Validation of the Patient Reported Outcomes in Parkinson’s Disease scale in outpatients
Objective: To validate PRO-PD in a random sample of outpatients with PD. Background: Successful treatment of Parkinson's disease (PD) requires symptom monitoring. Patient-Reported Outcomes in…Electronic Development of the MDS-UPDRS and MDS-NMS: Process and User Feedback
Objective: To describe the processes for development and obtaining user feedback of the electronic versions of the MDS Unified Parkinson’s Disease Rating Scale (MDS-UPDRS) and…Psychometric properties and construct validity of the Parkinson’s Disease-Cognitive Rating Scale (PD-CRS) in Colombia.
Objective: Assess the psychometric properties of PD-CRS in a Colombian population. Background: Cognitive impairment is frequent amongst people living with Parkinson’s disease: up to 40%…Application of Goal Attainment Scale as a patient-centered assessment for cervical dystonia
Objective: To explore the goal attainment scale (GAS) by interviewing the three most disturbing problems and changes after Botulinum toxin A injection in cervical dystonia…Relationship of satisfaction and adherence in remote digital monitoring: Updated results from a clinical drug trial in early Parkinson’s disease
Objective: Extend previous findings from a subset of individuals with early Parkinson’s disease (PD) demonstrating high satisfaction levels with daily remote monitoring with a digital…
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