Composite UHDRS shows extensive spatial correlation with grey matter and white matter volume in Huntington’s disease gene carriers
Objective: This work sought to determine the structural correlates of variability in cUHDRS in HD gene expansion carriers (HDGC). Background: Symbol digit modalities test (SDMT),…Digital monitoring of Huntington’s disease with smartphone and smartwatch wearable technology: The Digital-HD study
Objective: To investigate the tolerability and feasibility of using wearable smartphone and smartwatch technologies to monitor the motor, behavioural, cognitive and quality of life (QoL)…Communication Calendar for Interdisciplinary Therapy of Parkinson’s Disease
Objective: To develop a communication calendar (CC) to facilitate information exchange amongst therapists involved in interdisciplinary therapy of Parkinson's Disease (PD). Background: Increasing complexity of…Novel exploratory outcome assessments in GENERATION HD1
Objective: To improve collection of outcomes meaningful to patients with Huntington’s disease (HD) and their families, through the development of novel assessments of daily functional…Vascular Parkinsonism and Parkinson’s Disease: clinical differences concerning balance impairment
Objective: Determine and compare lower body predominance and balance between Vascular Parkinsonism (VP) and Parkinson’s Disease (PD)patients in a hospital-based sample. Background: Despite the recognition…Using functional status to aid interpretation of cUHDRS scores in patients with Huntington’s disease
Objective: To enhance understanding of the composite Unified Huntington’s Disease Rating Scale (cUHDRS) scoring by linking to established measures of meaningful daily function and independence…The Progressive Supranuclear Palsy Functional Disability Scale: Sensitivity to change
Objective: To determine the sensitivity to change within 12 months as well as completion time of the Progressive Supranuclear Palsy Functional Disability Scale (PSPFDS). Background:…Assessment of Caregiver Burden in Huntington’s disease
Objective: We aim to identify and characterize caregiver burden among HD caregivers, to see what aspects of HD caregiving are associated with the greatest burden…A characterization of the ADL-level in daily life with Parkinson`s Disease based on objective measurements and subjective experiences.
Objective: 1. Test whether slow response to the medication and EMO-periods (Early Morning Off), affects the patient`s experience of being able to perform ADL-functions. 2.…Parkinson Kinetigraph – does it change the management of PD patients?
Objective: This pragmatic randomized open trial evaluated if the information from a Parkinson Kinetigraph (PKG) recording changed the management of PD patients at a visit…
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