Phenotype of Parkinson’s Disease in African Americans Using NIH Toolbox Motor Measures
Objective: To determine phenotypic differences using qualitative and quantitative measures between African American (AA) and white (W) patients with Parkinson’s disease (PD) at Rush University…Clinical Dementia Rating Scale Sum of Boxes (CDR-SOB) in Parkinson’s Disease: Longitudinal Results
Objective: To assess the change over time (1-2 years) on the Clinical Dementia Rating Sum of Boxes (CDR-SOB) in Parkinson's disease (PD). Background: The CDR-SOB…Sustained Improvement in Freezing of Gait (FOG) and Treatment Satisfaction at 12 months After Initiation of Carbidopa/Levodopa Enteral Suspension (CLES) in Advanced Parkinson’s Disease (APD) Patients in USA: Interim Results from the PROviDE Study
Objective: To evaluate the long-term effectiveness of CLES on FOG and treatment satisfaction in APD patients. Background: FOG, prevalent in about 60% of APD patients,…Improving Diagnosis and Treatment of Anxiety in Parkinson’s Disease: IDATA-PD Study Update
Objective: 1. To develop an inventory to assess Parkinson’s disease (PD) specific anxiety for person centred psychotherapy interventions. 2. To develop manualised cognitive behaviour therapy…Measure of Social Relation in Huntington’s Disease: The Relationship Self-Questionnaire (RSQ)
Objective: Development and validation of the Relationship Self-Questionnaire (RSQ), specific to Huntington’s disease (HD), which aims tomeasurepatients self-perceived quality of their relationships (RS). Background: In…Effects of Rasagiline on Parkinson’s Disease Questionnaire (PDQ-39) Emotional Well-being Domain in Patients with Parkinson’s Disease (PD): A Post-Hoc Analysis of Clinical Trials in Japan
Objective: To evaluate the direct and indirect effects of rasagiline on emotional well-being domain of the PDQ-39 in patients with PD by a post-hoc analysis…MDS Translation Program for MDS-UPDRS, UDysRS, and MDS-NMS
Objective: To summarize the status of the ongoing MDS-sponsored translation programs for non-English versions of the MDS-UPDRS, UDysRS, and MDS-NMS. Background: The MDS-UPDRS, UDysRS, and…Passive monitored daily motor behavior significantly relates to quality of life in early Parkinson’s disease
Objective: To investigate whether passively acquired measures of gait and hand gestures are associated with health-related quality of life (HrQoL; PDQ-39) and health-state (EQ-5D-5L) in…A Systematic Review of the Psychometric Properties of Psychosis Rating Scales in Neurodegenerative Conditions
Objective: To provide an overview of psychosis rating scales validated in specific neurodegenerative disease populations and compare psychometric characteristics of the validated psychosis scales. Background:…The Progressive Supranuclear Palsy Clinical Deficits Scale
Objective: To develop a scale to monitor clinical deficits in patients with Progressive Supranuclear Palsy across its broad phenotypes. Background: There is currently no undisputed,…
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