Clinical Prediction of GBA Carrier Status in Parkinson’s Disease
Objective: To design a model for prediction of GBA carrier status based on clinical and demographic features in a cohort of PD patients. Background: Given…Self-report vs. informant-report of problematic behaviors using the Huntington’s Disease-Behavioral Questionnaire
Objective: To examine the utility of a new behavioral measure, the Huntington’s Disease–Behavioral Questionnaire (HD-BQ) (Hughes et al, 2023), in individuals with Huntington’s disease (HD).…Development and Clinimetric Testing Plan for the MDS Parkinson’s Disease Psychosis Rating Scale (MDS-PDPRS)
Objective: Present the development process and clinimetric testing plan for the International Parkinson and Movement Disorder Society Parkinson's Disease Psychosis Rating Scale (MDS-PDPRS). Background: Psychosis…Development of a health-related quality-of-life (HR-QoL) questionnaire for hereditary spastic paraplegia (HSP) patients and caregivers.
Objective: The aim of this project is to develop and validate a health-related quality-of-life (HR-QoL) questionnaire, in a patient and a caregiver version, specific for…Loneliness, Self-Efficacy, and Resilience: Neglected Modifiable Contributors to Parkinson’s Disease Symptom Severity and Quality of Life
Objective: To evaluate the degree to which modifiable psychosocial (PS) variables including loneliness, self-efficacy (SE) and resilience explain the variance observed in Parkinson’s disease (PD)…Comparative study of Non-Motor Symptoms and it’s correlation with Quality of Life in Parkinson’s disease and Atypical Parkinsonism
Objective: The present study aimed to evaluate and compare the non-motor symptoms and their correlation with quality of life in patients with PD and AP.…Impact of non-motor fluctuations on QOL in patients with Parkinson’s disease
Objective: To investigate the impact of non-motor fluctuations for QOL in patients with Parkinson's disease (PwPD) using a nine-item wearing-off questionnaire (WOQ-9). Background: Long-term levodopa…Gut dysbiosis in Indian Parkinson’s Disease Patients with Constipation
Objective: To analyse the gut microbiome and explore dysbiosis in Indian Parkinson’s Disease patients with and without constipation. Background: Global studies have associated gut dysbiosis…Unsupervised multimodal digital assessment of fatigue and sleep disorders in Parkinson’s disease: the IDEA-FAST study
Objective: To evaluate fatigue and sleep disorders in unsupervised conditions in neurodegenerative and autoimmune conditions using a combination of mobility, autonomic and sleep digital home…The Pain in Dystonia Scale (PIDS): Development and Validation
Objective: To develop a new rating instrument for pain in AOID and validate it in the most common form of AOID, cervical dystonia (CD). Background:…
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