Involving people with lived experience of Parkinson’s in trial design: the EJS ACT-PD initiative
Objective: To maximally involve people with the lived experience of Parkinson’s in the design of the first multi-arm multi-stage (MAMS) trial for disease modifying therapies…Feasibility of using wearable sensors to monitor activity and sleep patterns in inpatients with delirium and Parkinson’s disease
Objective: To assess the feasibility of using wearable sensors in Parkinson's disease (PD) inpatients with/without delirium and to quantify clinically relevant digital outcomes to facilitate…International Telemedicine during COVID-19 Pandemic in an Academic Movement Disorder Clinic
Objective: To assess international patients’ access to medical care from their movement disorder specialist before and during the COVID-19 pandemic and the impact of the…Sleep Quality and Nutrition effects in patients with Parkinson’s Disease
Objective: Establish the relationship between nutritional indicators and sleep quality index in patients with Parkinson disease. Background: One of the most frequent non-motor symptoms of…Utilizing digital biomarkers to explore risk factors for falls in patients with Lewy Body Dementia
Objective: To analyze risk factors for falls in individuals with Lewy Body Dementia (LBD) enrolled in PRESENCE. Background: PRESENCE was a phase 2 clinical trial…Does Macronutrient dietary Intake of patients with Parkinson disease correlates with the cognitive function (MoCA)?
Objective: Analyze the correlation between macronutrient dietary intake and cognitive function of patients with Parkinson’s Disease Background: Several studies have shown that implementing a healthy…Development of quantitative tools for in-home clinical assessment of people with Parkinson’s disease
Objective: To develop telehealth digital data collection methods for evaluation of multi-modal function in people with Parkinson’s Disease (PwPD) and develop biomedical informatics tools for…Happy to be home: Satisfaction with interdisciplinary home visits among individuals with advanced Parkinson’s Disease and their caregivers
Objective: To compare satisfaction with medical care among people with advanced Parkinson’s Disease (PD) and their caregivers at baseline (best usual care in a tertiary…Evaluating the use of digital biomarkers to test treatment effects on cognition and motor in patients with Lewy Body Dementia
Objective: To evaluate if frequent cognitive and motor tests using an iPad app and a wrist-worn actigraphy watch to track activity and sleep can detect…Advocacy for Neuropalliative Care in Parkinson Disease Care: The Need for an International Neuropalliative Care Society (INPCS)
Objective: To describe the International Neuropalliative Care Society (INPCS), its mission and values, and highlight the importance of palliative care for persons with movement disorders.…
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