2024 International Congress » Quality Of Life/Caregiver Burden in Movement Disorders

‘If you can’t beat them, join them’: a patient and family perspective on quality of life with North Sea progressive myoclonus epilepsy

SS. Polet, MMG. Bracke, MAJ. Tijssen, TJ. de Koning (Groningen, Netherlands)

“Quality of Life of Caregivers Living with a Movement Disorder. A Comprehensive Approach.”

R. Baños-Betancourt, A. Domínguez García, A. Cervantes-Arriaga, M. Rodríguez-Violante, A. Hernández-Medrano, W. Moguel-Cardín, G. Rivera-Monroy, K. Velázquez-Román, C. álvarez-Hernández, A. Guerra-Anzaldo, D. Romero-Terán, K. SáNCHEZ-RAMíREZ., S. Arechavala-Lopez, N. Moreno-Aldama, J. Delgado-Uriarte, E. Correa-Medina (Mexico City, Mexico)

A Novel Peer Mentoring Support System for Persons with Parkinson’s Disease

E. Lubas, TW. Liang, K. Stoveld, SK. Thurman (Philadelphia, USA)

Deep Brain Stimulation From the Perspective of Relatives and Caregivers: A Qualitative Analysis and Caregiver Burden

TUC. Saltoglu, YSK. Sücüllü Karadağ (İNCEK, Turkey)

Developing a Virtual Brick-Building Group for Veterans with Movement Disorders

J. Kaplan, C. Kausek, J. Lehosit (Richmond, USA)

Development and Feasibility Trial of iSupport-PD, a Digital intervention for carers of people with Parkinson’s and Cognitive Impairment

A. Hand, J. Slodkowska-Barabasz, J. Milne, A. Mccarthy, K. Greenwell (Newcastle-upon-Tyne, United Kingdom)

Gender Disparities in Quality of Life Domains Among Hispanic Individuals with Parkinson’s Disease: A Comparative Analysis

D. Bustamante-Mieles, C. Rodriguez-Alarcon, D. Piana-Castillo, G. Faggioni-Sanchez, C. Cevallos-Velasco, M. Barreiro-Guillén, R. Santibanez-Vasquez (Guayaquil, Ecuador)

Improving Neuropsychiatric Comorbidity in Geriatric Spinocerebellar Ataxia

M. Le, B. Carr (Gainesville, USA)

Incidence of Depression in the Caregivers of Parkinson’s Disease Patients

S. Soleimani, M. Salari, F. Hojjati Pour (Tehran, Islamic Republic of Iran)

International Perspectives of Care Partners for People with Parkinson’s Disease

R. Herlihy, E. Trahair, A. Allen, A. Gonzalez, K. Hill, L. Kapust, A. Kosem, J. Mckenzie, E. Book (Albany, USA)

Loneliness Relates to Gait Over Other Features of Parkinsonism

D. Gonzalez, R. Wilson, M. Tosin, C. Goetz (Chicago, USA)

Minimally Clinical Important Differences of Hemifacial Spasm Score-30 (HFS-30) and Hemifacial Spasm Score-7 (HFS-7) for Patients with Hemifacial spasm

N. Inthapong, W. Saengphatrachai, Y. Pitakpatapee, N. Rattanathamsakul, P. Sirvanitchapoom (Bangkok, Thailand)

Parkinson’s Disease (PD) and predictors of Driving Cessation: Results from a 6-year Longitudinal Study and a systematic review of the literature

P. Stamatelos, P. Hatzaki, I. Beratis, D. Pavlou, N. Andronas, E. Stanitsa, S. Fragkiadaki, D. Kontaxopoulou, A. Bonakis, A. Economou, G. Yannis, L. Stefanis, S. Papageorgiou (Athens, Greece)

Parkinson’s Disease Clinical Subtypes Differ in Health-Related QOL

E. Carr, T. Cash, C. Lessov-Schlaggar, H. Hwang, A. Eid, P. Kotzbauer, J. Perlmutter, M. Campbell (St. Louis, USA)

Perceptions of Diseases in Patients with Cervical Dystonia

D. Talkington, D. Sblendorio, K. Pyle, M. Coleman, M. Patel, M. Moreno-Escobar, A. Murray, A. Memon, J. Frey (Morgantown, USA)

Prevalence of non-motor symptoms and their impact in quality of life in PD: a Mexican Registry, 2011-2019 (the ReMePark-2 study).

A. Cervantes Arriaga, AJ. Hernandez Medrano, A. Dominguez Garcia, DP. Romero Terán, MF. Medina Perez, M. Rodriguez Violante, A. Abundes Corona, R. Solis Vivanco, AL. Guerra-Anzaldo, G. Rivera-Monroy, CF. álvarez-Hernández, RJ. Baños-Betancourt, WF. Moguel Cardín ()

Quality of life assessment in patients with Parkinson’s disease

S. Frikha, O. Ben Othmen, M. Ben Mahmoud, S. Fray, H. Jamoussi, M. Fredj, N. Ben Ali (Tunis, Tunisia)

Quality of Life in Parkinson’s Disease Patients with Sleep Disturbances

C. Falup-Pecurariu, L. Ungureanu, R. Filip, I. Murasan, B. Opritoiu, A. Zarnoveanu, S. Diaconu (Brasov, Romania)

State of happiness as outcome measure in sleep disorders in Parkinson’s disease

I. Murasan, S. Diaconu, L. Ungureanu, R. Filip, L. Irincu, C. Falup-Pecurariu (Brasov, Romania)

Stigmatizing Attitudes Towards People With PD Using The Parkinson’s Disease Social Stigma Perception Scale (PDSP): A Nationwide Study

AL. Guerra-Anzaldo, WF. Moguel-Cardin, A. Domínguez-García, AJ. Hernández-Medrano, G. Rivera-Monroy, K. Velázquez-Román, RJ. Baños-Betancourt, C. álvarez-Hernández, DP. Romero-Terán, KI. Sánchez-Ramírez, M. Rodríguez-Violante, A. Cervantes-Arriaga (Mexico City, Mexico)

The bypassing and embedded PEG J

R. Edward, O. Mitchell, W. Han, G. Singh Alg (London, United Kingdom)

The Impact of Apathy and Impulsivity on Caregivers in Atypical Parkinsonian Syndromes

M. Manconi, J. Donnelly, L. Massey, K. Tluchowska, S. Anugu, J. Rowe, B. Ghosh (Southampton, United Kingdom)

The Impact of Deep Brain Stimulation on the Embarrassment and Self-Esteem of Patients with Essential Tremor

A. Dave, J. Frey, J. Yu, J. Lopes, C. Hess (Plainsboro, USA)

Transforming Parkinson’s Care in Africa: Establishing a Global Virtual Support Group for Africans Impacted by Parkinson’s Disease

E. Bruce, M. Cham, T. Park, N. Fothergill-Misbah (Sogakope, Ghana)

Transforming Parkinson’s Care in Africa: Establishing the First Ever Support Group for People With Parkinson’s Disease and Their Caregivers in Tanzania.

M. Shayo, K. Haukila, T. Park, R. Walker, N. Fothergill-Misbah (Moshi, United Republic of Tanzania)

Uncovering Patient Perspectives on Parkinson’s Disease to Inform Individualized Care

A. Di Rocco, M. Armstrong, J. Carter, C. Chadha, K. Olson, L. Simone, L. Jarzylo (New York, USA)

What assistive devices do people with Parkinson’s disease find most useful?

H. Adams, C. Babbush, C. Kilbane (Cleveland, USA)