2023 International Congress » Quality Of Life/Caregiver Burden in Movement Disorders

Meeting: 2023 International Congress

Burden and management of tardive dyskinesia (TD): a cross-sectional international survey study to assess the perceptions and experiences of patients with TD

R. Ribalov, A. Yaari, A. Peyser Levin, A. Yang, D. Horchi, E. Berjonneau, P. Le Calvé, M. Tian, S. Reshef, S. Reed (Tel-Aviv-Yafo, Israel)

Change in quality of Life, depression, and lived experiences of women with Parkinson’s disease after deep drain stimulation

MS. Kim, S. Jo, KW. Park, SH. Lee, YS. Hwang, SJ. Chung (Seoul, Republic of Korea)

Comparative study of Non-Motor Symptoms and it’s correlation with Quality of Life in Parkinson’s disease and Atypical Parkinsonism

D. Joshi, A. Kumar, M. Tapadia (varanasi, India)

Concealment of Parkinson’s Disease: Prevalence and Impact on Health and Quality of Life

G. Yogev-Seligmann, B. Naamneh Abuelhija, M. Giveon, M. Meir Kestenbaum, M. Kafri (Haifa, Israel)

Coping strategies in people with Parkinson disease (PwP)

M A. Bacigalupe, D. Merino (La Plata, Argentina)

Development of a health-related quality-of-life (HR-QoL) questionnaire for hereditary spastic paraplegia (HSP) patients and caregivers.

J. Malina, E-M. Hüßler, B. Schröder, N. Wiesenberg, T. Kühl, S. Klebe (Essen, Germany)

Factors influencing health-related quality of life of patients with spinocerebellar ataxia

N. Weber, M. Buchholz, A. Rädke, J. Faber, T. Schmitz-Hübsch, H. Jacobi, T. Klockgether, B. Michalowsky (Greifswald, Germany)

Feasibility and acceptability of implementing dignity therapy as a supportive intervention for people with movement disorders.

D. Labuschagne, J. Fleisher, K. Woo, G. Fitchett (Chicago, USA)

Financial impact of Parkinson’s disease on women and men

C. Jiang, A. Liu, A. Ratnavel, K. Wang, A. Tsai, K. Wyman-Chick, E. Bayram (La Jolla, USA)

Gender inequities in people living with PD and their caregivers’ burden in Mexican population

AJ. Hernández-Medrano, DP. Romero-Terán, MA. Ruiz-Mafud, MAG. Medrano-Delgado, MF. Medina-Pérez, AY. Regalado-Mustafá, DR. Aguila-Godinez, LG. Lira-Juarez, A. Domínguez-García, G. Hernández-Armesto, EC. Santiago-Delacruz, AA. Herrera-Ruiz, K. Talavera Lagunas, GI. Cerda-Hernández, A. Alcocer-Salas, JF. García-Hernández, RA. Abundes-Corona, A. Cervantes-Arriaga, M. Rodríguez-Violante (La Fama, Tlalpan, Mexico)

Health status of Lewy Body Dementia caregivers predicts psychological response to peer mentoring intervention

M. Suresh, K. Woo, J. Fleisher (Chicago, USA)

Healthcare experiences of People with Parkinson’s Disease (PwP) during COVID-19 pandemic

V. Tomantschger, A. Tautscher-Basnett, C. Hohenwarter (Hermagor, Austria)

Keeping patients out of care facilities— clozapine rescues Parkinson’s patients with troublesome psychosis unresponsive to quetiapine and pimavanserin.

J. Iseringhausen, G. Riboldi, K. Astudillo, S. Frucht (New York, USA)

Making the invisible visible: A qualitative interview study on the impact of young onset Parkinson’s disease on (ex-)partners

W. Kapelle, A. Geerlings, I. Mutsaers, B. Bloem, M. Meinders, B. Post (Nijmegen, Netherlands)

Multi-stakeholder focus group study to develop recommendations of ways to improve treatment burden and capacity in Parkinson’s disease

QY. Tan, S. Fraser, H. Roberts, K. Ibrahim (Southampton, United Kingdom)

Parkinson’s disease management in the community

L. Ambrosio, MV. Navarta, D. Kunkel, A. Pedraz-Marcos, A. Palmar-Santos, A. Haahr, LB. Vester, LK. Bragstad, TL. Nielsen, NB. Kruse, EG. Hjelle, SB. Haavaag, MC. Portillo (Southampton, United Kingdom)

PARKinSOUND: Impact of participation in an orchestra in patients with Parkinson’s disease

S. Marques, S. Lopes, A. Ferreira, A. Silva, G. Carneiro, S. Varanda, P. Santos, A. Goios, M. Rodrigues (Braga, Portugal)

Patient perspectives on symptoms and functional impacts to inform a digital assessment of Parkinson’s disease

B. Fehlmann, A. Thomann, E. Davies, J. Twiss, C. Romano, D. Whalley, M. Mayorga, C. Levy, F. Lipsmeier, W. Popp, T. Kustermann, H. Svoboda, T. Nikolcheva, D. Trundell, M. Lindemann, K. Taylor (demuro)

Prevalence of urinary symptoms and its impact on life quality in patients living with parkinson disease in a mexican population

A. Herrera Ruiz, D. Aguila-Godinez, M. Ruiz-Mafud, M. Medrano-Delgado, A. Domínguez-García, E. Santiago-Delacruz, A. Regalado-Mustafá, M. Medina-Pérez, L. Lira-Juarez,, G. Hernández-Armesto, K. Talavera-Lagunas, J. García-Hernández, A. Hernández-Medrano, D. Romero-Teran, A. Alcocer-Salas, G. Cerda Hernández, A. Abundes-Corona, A. Cervantes-Arriaga, M. Rodríguez-Violante (Mexico City, Mexico)

Relationship between agricultural vulnerability to organic compound fungicides and herbicides and Parkinson’s disease incidence in rural population in northern India

R. Kumari, A. Rao, A. Gaur (Delhi, India)

Relationship of health-related quality of life (HRQoL) patterns with clinical diagnosis in patients with spinocerebellar ataxia (SCA) – A latent class analysis

M. Buchholz, N. Weber, T. Klockgether, B. Michalowsky (Greifswald, Germany)

self-compassion, trait worry and sleep in parkinson’s disease (PD) patients

M. Cusnir, S. Diaconu, E. Ungureanu, B. Ciopleiasb, R. Zosin, I. Murasan, C. Falup-Pecurariu (Brasov, Romania)

Social and gender inequity on overall survival and access to deep brain stimulation in Parkinson disease patients in Colombia

C. Pantoja-Ruiz, D. Rosselli (Bogota, Colombia)