MDS Virtual Congress 2021 » Quality Of Life/Caregiver Burden in Movement Disorders

‘In It Together’: including carers to improve outcomes for people with Parkinson’s

K. Mcewan, A. Hand, A. Clarke, K. Brittain, A. Bate, S. Dalkin, S. Mccarthy, R. Bradford, C. Allen, K. Mcdonald (Newcastle Upon Tyne, United Kingdom)

A Pandemic Care Partner Summit: Online Program Helps Parkinson’s Care Partners Take Positive Actions

D. Perret, A. Wallis (Miami, USA)

A qualitative evaluation of the health-related quality of life impact on informal caregivers to patients with neurogenic orthostatic hypotension

K. Gallop, N. Pham, G. Maclaine, E. Saunders, B. Black, S. Acaster (London, United Kingdom)

Attitudes towards risk disclosure in prodromal Parkinson’s disease. Is there a cultural difference?

G. Kayis, R. Yilmaz, G. Yalcin-Cakmakli, B. Arda, B. Elibol, MC. Akbostanci (Ankara, Turkey)

Care Partners in Parkinson’s: Who calls the Parkinson’s Foundation Helpline and why?

A. Hedges, S. Metz, A. Diaz, L. Pituch, J. Mcclure, D. Ojeda, C. Mckee, A. Janicke, T. Via, M. Feeney (Miami, USA)

Caregiver burden in patients with Parkinson disease

S. Tomic, J. Kragujevic, Z. Popijac, V. Pekic (Osijek, Croatia)

Caregivers’ Experiences and Coping Mechanisms in Caring for Persons with Parkinson’s Disease: A Ghanaian Support Group Meeting Report

M. Agoriwo, B. Atsivor, E. Djzokoto (Ho, Ghana)

Caregiving in Parkinson’s Disease: An International Perspective

E. Book, R. Dawson, A. Allen, L. Kapust, J. Mckenzie, M. Ueda, A. Yu (Vancouver, Canada)

Caregiving people with Parkinson’s disease (PPD)

M. Bacigalupe (La Plata, Argentina)

Complex Pediatric Tone and Movement Disorder Clinic: A Model for Multi-disciplinary Care in Qatar.

K A. Mohamed, I. Pople, K. Al-Kharazi, K. Southwood, C. Le Bars, A. Creighton-Griffiths, B S. Patel, E. Makhoul, T. Collier, L. Thornton (Doha, Qatar)

Dance for Movement Disorders: Improving Health and Quality of Life

K. Mason, D. Leventhal, J. Sonke, J. Langley, B. Whiteside, T. Gyang, B. Borgert, E. Johnson, D. Riley, C. Cassidy, L. Sinclair (Gainesville, USA)

Dyskinesia, Pain, and Quality of Life in Parkinson’s Disease: Post Hoc Analysis From the DYSCOVER Study

E. Freire Alvarez, P. Vanni, E. Kurca, L. Lopez Manzanares, N. Kovacs, C. Spanaki, Y. Liu, T. Gao, L. Bergmann, O. Sanchez-Solino, L. Barbato (Elche, Alicante, Spain)

Evaluation of Health-Related Quality of Life for Individuals with Huntington’s Disease and Care Partners in Canada

N. Budd, T. Mestre, E. Shaw, M. Mayer, P. Ekwaru, S. Mcmullen, E. Graves, J. Wu, B. Maturi, T. Cowling (Mississauga, Canada)

Life Satisfaction and Adaptation in Persons with Parkinson’s Disease

L. Rosengren, A. Forsberg, C. Brogardh, J. Lexell (Lund, Sweden)

Parkinson’s Disease, Cognitive Function and Health Literacy: A Problem with Shared Decision Making

O. Kaczmarek, A. Sethi, P. Tierney, B. Bumstead, M. Buhse, E. Kravis, B. Anand, M. Zarif, M. Gudesblatt (Patchogue, USA)

Parkinson’s Disease, Cognitive Function: Exploration of the Relation of Multi-Domain Computerized Cognitive Testing and IADL (instrumental activities of daily living) and Neuro-QoL Upper Extremity Function (Fine Motor, ADL)

P. Tierney, O. Kaczmarek, A. Sethi, B. Bumstead, M. Buhse, E. Kravis, B. Anand, M. Zarif, M. Gudesblatt (Patchogue, USA)

People living with Parkinson’s disease during the COVID-19 Pandemic: A cross-sectional survey of the Canadian experience

M. Mckeown, T. Mestre, E. Crighton (Ottawa, Canada)

Quality of Life, Perceived Social Support and Caregiver Burden in Parkinson’s Disease

P. Thomas, A. R, B. B, R. Yadav, V. Holla, N. Kamble, P. Pal (Bangalore, India)

Sex-specific associations between care partner burden and activities of daily living in Parkinson’s disease

R. Gandhi, D. Schiehser, N. Whiteley, V. Filoteo, S. Lessig, I. Litvan, E. Bayram (La Jolla, USA)

Stabilization of overall quality of life via interdisciplinary home visits among individuals with advanced PD

J. Fleisher, M. Levin, K. Woo, S. Hess, F. Akram, B. Ouyang, D. Hall, J. Chodosh (Chicago, USA)

Strategies for Social Prescribing: Combating Loneliness in Parkinson’s Disease

I. Subramanian, J. Farahnik, L. Mischley (Los Angeles, USA)

The experiences of treatment burden in people with Parkinson’s (PwP) and their caregivers: a systematic review of qualitative studies

QY. Tan, N. Cox, S. Lim, L. Coutts, S. Fraser, H. Roberts, K. Ibrahim (Southampton, United Kingdom)

The impact of gender identity and gender role orientation on health-related quality of life in people with Parkinson’s disease.

I. Göttgens, S. Darweesh, B. Bloem, S. Oertelt-Prigione (Nijmegen, Netherlands)

The impact of lockdown due to the COVID-19 pandemic on Asian cervical dystonia patients treated with Botulinum toxin injections

P. Wongwan, P. Panyakaew, R. Bhidayasiri (Bangkok, Thailand)

Translation and validation of two Parkinson’s disease specific burden questionnaires from German into French.

S. Bayen, J. Heutte, J-C. Vanderbecken, C. Moreau, L. Defebvre, W. Messaadi, D. Devos, N. Messaadi (Lille, France)

Validation of the UCLA Loneliness Scale in Parkinson’s Disease During a Period of Social Distancing

I. Subramanian, J. Farahnik, L. Mischley (Los Angeles, USA)