21st International Congress » Quality Of Life/Caregiver Burden in Movement Disorders

1:45pm-3:15pm

‘It’s not disgraceful to say you can’t cope’ – Understanding the caregivers’ perspective in care home placement for people with Parkinson’s

A. Hand, L. Oates, W. Gray, R. Walker (North Shields, United Kingdom)

1:45pm-3:15pm

A national Swedish self-management program for people with Parkinson’s disease – patients and relatives view

C. Hellqvist, C. Berterö, M. Levander, N. Dizdar, P. Hagell (Linköping, Sweden)

1:45pm-3:15pm

A Novel Model of Care for Advanced Parkinson’s Disease and Related Disorders: Interdisciplinary Home Visits

J. Fleisher, W. Barbosa, M. Sweeney, S. Oyler, A. Lemen, A. Fazl, M. Ko, T. Meisel, N. Friede, G. Dacpano, R. Gilbert, A. Di Rocco, J. Chodosh (New York, NY, USA)

1:45pm-3:15pm

A pilot study of mindfulness yoga on psychological distress in people with Parkinson’s Disease (PD)

JJ.Y.-Y. Kwok, J.C.-y. Kwan, H.Y.-L. Chan (Hong Kong, Hong Kong)

1:45pm-3:15pm

Advance care planning in advanced Parkinsonian patients in a long-term care hospital

M.-J. Kim, H.J. Kim, J.-K. Kim, H.-R. Na, S.-B. Koh (Seoul, Republic of Korea)

1:45pm-3:15pm

Aspects of Quality of Life in MSA and PSP

L. Wiblin, M. Lee, D. Burn (Newcastle-upon-Tyne, United Kingdom)

1:45pm-3:15pm

Assessing the extent of carer strain in Parkinson’s disease

R. Varadarassou, V. Queen, E. Pearson, F. Murphy, M. Turner, C. Carroll (Plymouth, United Kingdom)

1:45pm-3:15pm

Assisted Suicide of patients with parkinsonian syndromes in Switzerland – the need of early and continuous integration of palliative care and dignitiy therapy

S. Lorenzl, L. Butzhammer, G. Nübling (Salzburg, Austria)

1:45pm-3:15pm

Changes in Functioning Associated with Exercise in Individuals with Parkinson’s

L. Clack, B. Riemann, M. Cohen (Savannah, GA, USA)

1:45pm-3:15pm

Changing patterns of intimate relationships as dementia emerges in Parkinson’s disease

S. Vatter, K. McDonald, S. McCormick, I. Leroi (Manchester, United Kingdom)

1:45pm-3:15pm

Combined aerobic and function-based exercise in a group setting improves quality of life and functional mobility in persons with Parkinson disease

J. Russell, L. Wolf, T. McMath, L. Shaffer, C. Collins, A. Mansur, D. Zid, D. Hinkle (Columbus, OH, USA)

1:45pm-3:15pm

Driving license and car accidents in patients with Parkinson’s disease

M. Tomiyama, T. Ueno, H. Nishijima, T. Kon, R. Haga, Y. Funamizu, A. Arai, C. Suzuki, J. Nunomura, M. Baba (Aomori, Japan)

1:45pm-3:15pm

Factors associated with health related Quality of Life (HRQOL) in Korean Parkinson patients

J.H. Kang, S. Jang, J.-s. Kim, S.J. Chung, J.S. Baik, Y.J. Kim, H.-I. Ma (Jeju, Republic of Korea)

1:45pm-3:15pm

Factors that contribute to the greatest levels of caregiver strain in Parkinson’s

A. Hand, L. Oates, W. Gray, R. Walker (North Shields, United Kingdom)

1:45pm-3:15pm

From local partnership to national network: the growth of a medically connected, community based program model for Parkinson’s wellness

A. Lemen, P. Schmidt, PhD, R. Hagestuen, RN, V. Edelson, C. Kohles, M. Donovan, T. Elkins, M. Sweeney, LMSW, A. DiRocco, MD (New York, NY, USA)

1:45pm-3:15pm

Impact and communication of OFF periods in Parkinson disease

T. Rastgardani, M. Armstrong, A. Gagliardi, C. Marras (Toronto, ON, Canada)

1:45pm-3:15pm

Impact of levodopa-induced dyskinesias on Health-related Quality of Life. Results from the French COPARK study.

S. Perez-Lloret, L. Negre-Pages, P. Damier, A. Delval, P. Derkinderen, A. Destée, W. Meissner, F. Tison, O. Rascol (Buenos Aires, Argentina)

1:45pm-3:15pm

Implanted Brain-Computer Interface for communication in people with motor impairment

E. Pels, E. Aarnoutse, M. Vansteensel, S. Leinders, Z. Freudenburg, M. Branco, M. Vanden Boom, T. Denison, N. Ramsey (Utrecht, Netherlands)

1:45pm-3:15pm

Internet-based Cognitive Behavioral Therapy for general function in patients with Parkinson’s Disease: A randomized controlled trial.

M. Kraepelien, R. Schibbye, P. Svenningsson, N. Lindefors, V. Kaldo (Stockholm, Sweden)

1:45pm-3:15pm

Management of parkinsonism in primary care.

A. Planas-Ballve, M. Muñoz, K. Beyer, L. Ispierto, D. Vilas, A.M. Crespo, L. Abraira, T. Canento, R. Álvarez (Badalona, Spain)

1:45pm-3:15pm

Mindfulness for People with Parkinson’s: Emotional Well Being, Social Support and Group Effect

B. Pickut, S. Woolner, R. Nyenhuis, D. Nyenhuis (Grand Rapids, MI, USA)

1:45pm-3:15pm

Neurogenic Orthostatic Hypotension Burden of Illness Patient and Caregiver Survey: Impact of Symptoms

D. Claassen, C. Adler, C. Gibbons, L.A. Hewitt (Nashville, TN, USA)

1:45pm-3:15pm

Palliative Care in Parkinson Disease

A. Patterson, L. Almeida, M. Okun, I. Malaty (Gainesville, FL, USA)

1:45pm-3:15pm

Patient characteristics that impact caregiver burden in Parkinson’s disease in Singapore

K. Prakash, E.-K. Tan (Singapore, Singapore)

1:45pm-3:15pm

Patient-Reported Outcomes in a Prospective Real-World Study of Droxidopa for the Treatment of Neurogenic Orthostatic Hypotension

S. Kymes, C. François, K. McLeod, A. Duhig, A. Ogbonnaya, A. Quillen, J. Cannon, C. Shibao, B. Yue, I. Biaggioni (Deerfield, IL, USA)

1:45pm-3:15pm

PD Check-In: Supporting people with Parkinson’s Disease in self-managed maintenance of communication following intensive speech treatment

A. Finnimore, D. Theodoros, A. Rumbach (Brisbane, Australia)

1:45pm-3:15pm

Perceived facilitators and barriers in communicating with family member among people with Parkinson’s Disease: A focus group study

J. Lee, Y. Kim (Seoul, Republic of Korea)

1:45pm-3:15pm

Physical Activity and Quality of Life in People with Parkinson’s Disease – A Long-term Follow-up Study

I-F. Shih, K. Paul, J. Bronstein, B. Ritz (Los Angeles, CA, USA)

1:45pm-3:15pm

Psychological distress among caregivers of Parkinson’s patients assessed with the SCL-90-R self-reported questionnaire

B. Ozdilek, S. Bozkurt Zincir, D. Ince Gunal (Istanbul, Turkey)

1:45pm-3:15pm

Psychosocial evaluation in caregivers of patients with Parkinson’s disease: analysis of a cohort of Rio de Janeiro / Brazil

V. Carvalho Neri, C. Teixeira Muratori, P. Portes Ferreira, P. Sandin, G. Licassali, S. Barbosa Gomes, E. Reynaldo (Campos dos Goytacazes, Brazil)

1:45pm-3:15pm

Psychosocial Impact of X-Linked Dystonia Parkinsonism (XDP) of Panay

J.N. Ong, C. Go, G. Solinap, P. Acuna (Manila, Philippines)

1:45pm-3:15pm

Quality of life and its influencing factors in a local population of advanced geriatric Parkinson´s Disease patients

M. Klietz, A. Tulke, C. Schrader, L. Diekstall, L. Müschen, D. Dressler, F. Wegner (Hannover, Germany)

1:45pm-3:15pm

Quality of Life in Homebound People with Advanced Parkinson’s Disease: Feasibility and Outcomes of an Interdisciplinary Home Visit Program

J. Fleisher, M. Sweeney, S. Oyler, A. Lemen, A. Fazl, M. Ko, T. Meisel, N. Friede, G. Dacpano, R. Gilbert, A. Di Rocco, J. Chodosh (New York, NY, USA)

1:45pm-3:15pm

Redefining social work for Parkinson’s: the development of a model of care for specialized support in the clinic, community and home

A. Lemen, LCSW, M. Sweeney, LMSW, V. Luce, LCSW, D. Rayment, LMSW, A. Di Rocco (New York, NY, USA)

1:45pm-3:15pm

Study of an early wellness program in Parkinson’s disease: impact on quality of life and early intervention guidance

B. Page, H. Shill (Phoenix, AZ, USA)

1:45pm-3:15pm

Suicide in Parkinson disease

W. Li, H. Seah, L. Ng, Y. Tay, L. Au, L. Tan (Singapore, Singapore)

1:45pm-3:15pm

The FDA is listening: Integrating the voice of the patient in drug development for Parkinson’s and Huntington’s diseases.

D. Stephenson, A. Porter, K. Romero, G. Podskalny, E. Bastings, B. Dunn, S. Goldstein, T. Mullin (Tucson, AZ, USA)

1:45pm-3:15pm

The Role of Social Work in Improving Comprehensive Care for Parkinson’s Disease

E. Book, A. Lemen (Vancouver, BC, Canada)

1:45pm-3:15pm

The secular change of quality of life in patients with Parkinson’s disease.

A. Kumon, M. Saruwatari, N. Kawashima, K. Hasegawa (Sagamihara, Japan)

1:45pm-3:15pm

The Value of Follow Up: The Role of Social Work and Nursing Calls in an Interdisciplinary Home Visit Program for Advanced Parkinson’s Disease Patients

S. Oyler, M. Sweeney, A. Lemen, A. Di Rocco, J. Fleisher (New York, NY, USA)

1:45pm-3:15pm

Understanding the illness experience of people living with Parkinson’s disease: A mixed methods study

JJ.Y.-Y. Kwok, M.M. AuYeung, H.Y.-L. Chan (Hong Kong, Hong Kong)