20th International Congress » Quality of life/caregiver burden in movement disorders

12:30pm-2:00pm

A comparison study of health-related quality of life between female and male patients with Parkinson’s disease

B. Donmez Colakoglu, T. Kahraman, E. Goz, F. Soke, A. Genc, P. Keskinoglu (Izmir, Turkey)

12:30pm-2:00pm

A novel interdisciplinary palliative care clinic for advanced Parkinson’s disease and Parkinsonian syndromes

K.K. Tuck, L. Mann, S. Anderson, T. Borcich, J. Wilhelm, L. Bryans, J. Carter (Portland, OR, USA)

12:30pm-2:00pm

A study to assess the quality of life and strain in caregivers of people with Parkinson’s disease in India

F. Pullishery, F. Fawaz (Malappuram, India)

12:30pm-2:00pm

Are people with Parkinson’s disease living in care homes in the UK underserved? Identifying models of care and barriers to care access

L.L. Oates, A. Hand, R.W. Walker, W.K. Gray, P. Reynolds, L. Cockram (North Shields, United Kingdom)

12:30pm-2:00pm

Assessing the impact of PD motor symptom states on quality of life in patients with advanced Parkinson’s disease

Y. Jalundhwala, P. Kandukuri, T. Marshall, A. Yucel, K. Chatamra, K. Sail (Mettawa, IL, USA)

12:30pm-2:00pm

Assessment and connection to care: The vital role of the social worker in an interdisciplinary home visit program for advanced Parkinson’s disease patients

M.M. Sweeney, A.C. Lemen, S.E. Oyler, R.M. Gilbert, A. Fazl, J. Chodosh, A. Di Rocco, J.E. Fleisher (New York, NY, USA)

12:30pm-2:00pm

Assessment of malnutrition in patients with Parkinson’s disease

O. Yilmaz Kusbeci, I. Inci, B. Donmez Colakoglu, N. Erdogmus Ince, R. Cakmur (Izmir, Turkey)

12:30pm-2:00pm

Assessment of the quality of life of patients with Parkinson’s disease

S. Lukmonov, D. Tolibov, A. Sobirov, F. Yunusov, K. Abdukhalimova, D. Jamilov, R. Agzamov, S. Tursunov (Tashkent, Uzbekistan)

12:30pm-2:00pm

Broadening the evaluative scope of quality of life in Parkinson’s: Testing the construct validity of the ICECAP-O instrument

Y. Xin, J. Lewsey, R. Gray, C.E. Clarke, E. McIntosh (Glasgow, United Kingdom)

12:30pm-2:00pm

Cognitive decline in Parkinson’s disease: Impact on quality of life of caregivers

R.A. Lawson, A.J. Yarnall, G.W. Duncan, F. Johnston, T.K. Khoo, D. Collerton, J.P. Taylor, D.J. Burn (Newcastle upon Tyne, United Kingdom)

12:30pm-2:00pm

Developing palliative care clinics for patients with advanced Parkinson’s disease: Practical approaches, challenges, and experiences

C.L. Dietiker, N.B. Galifianakis, M. Katz, S.L. Heath (San Francisco, CA, USA)

12:30pm-2:00pm

Direct assessment of psychosocial measures using eye tracking technology in advanced ALS – Can preserved autonomy and psychological wellbeing modify disease course?

K. Linse, W. Rüger, M. Joos, H. Schmitz-Peiffer, A. Storch, A. Hermann (Dresden, Germany)

12:30pm-2:00pm

Do-not-resuscitate utilization in inpatient Parkinson’s disease in the United States

A. Mahajan, A. Patel, G. Nadkarni, C. Sidiropoulos (Detroit, MI, USA)

12:30pm-2:00pm

Dyadic decision making & decisional satisfaction in advanced Parkinson’s disease

B. Habermann, J.Y. Shin (Newark, DE, USA)

12:30pm-2:00pm

Effectiveness of occupational therapy multi-domain group therapy program for Parkinson’s disease

R.K.M. Wong, D.S.W. Tsang, C.K.Y. Lau, A.Y.Y. Chan, D.T.M. Chan, X. Zhu, W. Poon, V.C.T. Mok (Hong Kong, Hong Kong)

12:30pm-2:00pm

Evaluation of stigmatization and quality of life before and after botulinum toxin treatment in hemifacial spasm

B. Yuksel, F. Genc, A. Yaman, P. Dogan Ak, E. Ozaydin Goksu, A. Aybar, Y. Bicer Gomceli (Antalya, Turkey)

12:30pm-2:00pm

Falls in Parkinson’s disease : Effects on health related quality of life

T.H. Farombi, J. Yaria, M.O. Owolabi, A. Ogunniyi (Ibadan, Nigeria)

12:30pm-2:00pm

Feasibility and preliminary outcomes of an interdisciplinary home visit program for patients with advanced Parkinson’s disease

J.E. Fleisher, M.M. Sweeney, S. Oyler, A.C. Lemen, A. Fazl, G. Dacpano, R.M. Gilbert, A. Di Rocco, J. Chodosh (New York, NY, USA)

12:30pm-2:00pm

Group meetings for newly diagnosed Parkinson’s disease patients and their spouses: A preliminary experience

N. Geva, A. Hilel, Y. Manor, S. Arad, A. Ezra, N. Giladi, T. Gurevich (Tel Aviv, Israel)

12:30pm-2:00pm

Health related quality of life in patient with Parkinson’s disease using deep brain stimulators (DBS)- A cross sectional study

F. Pullishery, A. Abraham (Malappuram, India)

12:30pm-2:00pm

How long is the wait to see a Parkinson’s disease specialist in the United States?

S.G. Reich, K. Holmes, J. Martello, K. Maki (Baltimore, MD, USA)

12:30pm-2:00pm

Impact of a holistic and interdisciplinary care for patients with Parkinson’s disease – Cologne Parkinson’s network. Results of a randomized study with subanalysis

R.A. Dano, J. Schill, L. Rochhausen, K. Williamson, L. Timmermann, C. Eggers (Cologne, Germany)

12:30pm-2:00pm

Impact of self-efficacy education on physical and psychosocial functioning in newly-diagnosed Parkinson patients

D. Cook, C. McRae, R. Kumar (Englewood, CO, USA)

12:30pm-2:00pm

Impact of subclinical apathy prior to deep brain stimulation on the quality of life of patients with Parkinson’s disease

M.A. Higuchi, T. Mishima, H. Abe, T. Morishita, S. Fujioka, J. Fukae, Y. Tsuboi (Fukuoka, Japan)

12:30pm-2:00pm

Implications of direct and indirect costs in health-related quality of life in Parkinson’s disease: A cross-sectional study in Mexico

M. Rodríguez-Violante, A. Jorge de Saráchaga, A. Cervantes-Arriaga, H. Soto-Molina, M. Márquez-Cruz (Mexico City, Mexico)

12:30pm-2:00pm

Influence of vibration to quality of life of patients with Parkinson’s disease

V. Rashidov (Tashkent, Uzbekistan)

12:30pm-2:00pm

Life expectancy and dementia – Two sides of the coin in Parkinson’s disease

S. Tursunov, G. Rakhimbaeva, F. Yunusov, K. Abdukhalimova, R. Agzamov, R. Mirzaev, D. Lutfullaeva, J. Olimov (Tashkent, Uzbekistan)

12:30pm-2:00pm

Life satisfaction in Parkinson’s disease – associated factors

K. Rosqvist, P. Hagell, P. Odin, S. Iwarsson, H. Ekström, M.H. Nilsson (Lund, Sweden)

12:30pm-2:00pm

Longitudinal assessment of caregiver strain in Parkinson’s disease

C.K. Okoro, P. Schmidt, S.S. Wu, J.G. Goldman (Chicago, IL, USA)

12:30pm-2:00pm

Meaningful life attitudes support positive coping in patients with idiopathic Parkinson’s disease

S. Gräber, J. Meinhardt, E. Schäffer, A. Apel, D. Berg (Tübingen, Germany)

12:30pm-2:00pm

Measuring interdependence of the health status of people with Parkinson’s disease and their spouses

F. Noubary, S.D. Gunnery, E.M. Naumova, M. Saint-Hilaire, C.A. Thomas, L. Tickle-Degnen (Boston, MA, USA)

12:30pm-2:00pm

Medication errors: The role of the nurse in an interdisciplinary home visit program for advanced Parkinson’s disease patients

S.E. Oyler, J.E. Fleisher, M.M. Sweeney, A.C. Lemen, A. Fazl, G. Dacpano, R.M. Gilbert, A. Di Rocco, J. Chodosh (New York, NY, USA)

12:30pm-2:00pm

Motivators and barriers to participation in exercise in Parkinson’s disease

M. Afshari, Y. Kianirad, D. Bega (Chicago, IL, USA)

12:30pm-2:00pm

Motor symptoms in patients with early stages of Parkinson’s disease

E.N. Gubanova, N.V. Fedorova (Moscow, Russia)

12:30pm-2:00pm

My PD Journey: Experiences reported by people with Parkinson’s disease in several European countries – A quantitative and qualitative study

A. Schrag, O. Rascol, R. Merritt, S. Hotham, G. Bartl, L. Graham, On behalf of the European Parkinson's Disease Association (EPDA) and the Movement Disorder Society- European Section European Section (London, United Kingdom)

12:30pm-2:00pm

Non-contact boxing in Parkinson’s disease

Z.R. Yee, S.H.X. Liew (Singapore, Singapore)

12:30pm-2:00pm

Parkinson’s disease and the frequent reasons for emergency admission in Metropolitan Medical Center; a 2 year retrospective study

C.L. Go, K.A. Wong (Manila, Philippines)

12:30pm-2:00pm

Patients’ employment status and quality of life affect caregivers burden in Parkinson’s disease in Singapore

K.M. Prakash, N.V. Nadkarni, W.K. Lye, E.C. Lim, E.K. Tan (Singapore, Singapore)

12:30pm-2:00pm

Predictors of clinically meaningful change in PDQ-39 in Parkinson’s disease

T. Simuni, S. Wu, Y. He, C. Marras, T. Davis, E. Nelson, F. Cubillos, P. Schmidt, On behalf of the NPF QII Investigators (Chicago, IL, USA)

12:30pm-2:00pm

Preliminary results for a study on quality of life in Huntington’s disease patients and their caregivers in Peru

A. Vishnevetsky, M.A. Inca-Martinez, M. Illanes-Manrique, M. Cornejo-Olivas (Lima, Peru)

12:30pm-2:00pm

Promoting optimal physiotherapy practice worldwide: Role of the Association of Physiotherapists in Parkinson’s disease Europe (APPDE)

M. Graziano, D. Jones, B. Ramaswamy, F. Lindop (Esch-sur-Alzette, Luxembourg)

12:30pm-2:00pm

Quality of life and epidemiological profile of patients undergoing botulinum toxin treatment

G. Amorelli, L.F. Vasconcellos, M. Spitz, L.F. Fraga (Rio de Janeiro, Brazil)

12:30pm-2:00pm

Quality of life and living with Parkinson’s in Ireland

I. Cassidy, P. Meskell, M.P. Butler, M. Richardson, C. Kennedy, S. Coote, P. Boers (Limerick, Ireland)

12:30pm-2:00pm

Quality of life of Parkinson’s disease patients in a tertiary hospital in Hong Kong

H.F. Chan, Y.F. Cheung, D.K.W. Chau, T. Fung, I. Chan, W.C. Fong (Hong Kong, Hong Kong)

12:30pm-2:00pm

The association between objectively measured physical activity and health-related-quality of life in people with Parkinson’s disease

J.M.T. Van Uem, I. Liepelt-Scarfone, B. Cerff, M. Kampmeyer, J. Prinzen, M. Zuidema, M.A. Hobert, S. Hucker, S. Del Din, S. Gräber, D. Berg, W. Maetzler (Tübingen, Germany)

12:30pm-2:00pm

The care needs project: Understanding the experience of people with Parkinson’s in institutional care and understanding the care needs of people with Parkinson’s

A. Hand, R.W. Walker, W.K. Gray, L.L. Oates (North Shields, United Kingdom)

12:30pm-2:00pm

The changing profile of informal carers for people with Parkinson’s with disease progression

A. Hand, R.W. Walker, W. Gray, K. Baker (North Shields, United Kingdom)

12:30pm-2:00pm

The effect of a structured medication review on quality of life in patients with Parkinson’s disease. An interim analysis

A. Verbeek, N. Oonk, E. Munster, K. Movig, K. ter Huurne, H. Nijmeijer, J. van der Palen, L. Dorresteijn (Eerbeek, Netherlands)

12:30pm-2:00pm

The value of preference-based measures of quality of life in people with Parkinson’s: A systematic review

Y. Xin, E. McIntosh (Glasgow, United Kingdom)

12:30pm-2:00pm

Treating Parkinson’s 2015–A nationwide survey of treatment responses and complications in 1000 Irish patients with Parkinson’s disease

C. Stubbe, P. Bogdanova-Mihaylova, N. Kavanagh, K. Mulpeter, D. Bradley, T. Lynch, T. Counihan, P. Brown, S. O'Sullivan, R.A. Walsh (Dublin, Ireland)

12:30pm-2:00pm

Twelve-week sensor assessment in Parkinson’s disease: Impact on quality of life

J.M.T. Van Uem, K.S. Maier, A.T. Santos, O. Fagerbakke, F. Larsen, J.J. Ferreira, W. Maetzler (Tübingen, Germany)