Validation Study of the Parkinson’s Disease Stigma Questionnaire (PDStigmaQuest)
Objective: To test the psychometric properties of the newly developed Parkinson’s Disease Stigma Questionnaire (PDStigmaQuest). Background: Stigma is a significant aspect of Parkinson’s disease (PD).…Quality Improvement of Careflow Referrals to Parkinson’s Disease Nurse Specialist (PDNS) Service at East Kent Hospitals University Foundation Trust (EKHUFT)
Objective: The aim of this study was to increase the proportion of appropriate referrals to 70% using an online banner. A secondary objective was to…MOVE-PD: Mapping the Correlation of Sedentary behavior with Motor Symptoms in Parkinson’s Disease
Objective: Mapping the correlation between sedentary behavior (SB) and Parkinsons (PD) specific motor symptoms, measured on objective data from wearables. Background: People with Parkinson's (Pwp)…The Spatiotemporal Characteristics of Floor Sitting Rising in Parkinson’s Disease (PD)
Objective: To develop a method to characterize Floor Sitting Rising (FSR) in people with Parkinson disease (PwP). Background: Transitioning to the floor to a seated…Patient-developed Unique Methods to Overcome Freezing of Gait in Parkinsonian Disorders
Objective: To present and share unique methods to overcome freezing of gait (FOG) in parkinsonian disorders. Background: Freezing of gait (FOG) is an episodic and…Minimally Clinical Important Differences of Hemifacial Spasm Score-30 (HFS-30) and Hemifacial Spasm Score-7 (HFS-7) for Patients with Hemifacial spasm
Objective: We aimed to estimate the MCIDs of HFS-30 and HFS-7, and factors associated with the MCID along with baseline and change score of HFS-30…Developing a Supportive Care and Wellness Program for Parkinson’s Patients
Objective: To review the literature and framework of the Supportive Care and Wellness Program at Weill Cornell Parkinson's Disease & Movement Disorders Institute for people…Assessing Barriers to Advance Care Planning in Parkinson’s Disease Within a Cuban-American Population
Objective: Determine attitudes toward advance care planning among Cuban-American people with Parkinson’s disease (PWP). Background: Advance care planning (ACP) is a process that allows individuals…Essential3: An Innovative Multi-Study Phase 3 Program to Evaluate the Efficacy and Safety of Ulixacaltamide
Objective: An innovative, multi-study Phase 3 program to definitively assess safety and efficacy of ulixacaltamide in essential tremor (ET). Background: Phase 2 studies of ulixacaltamide,…Correlation Between Sleep and Quality of Life in People With Parkinson’s Disease Treated With Continuous Subcutaneous Infusion of Foslevodopa/Foscarbidopa
Objective: To assess the correlation between sleep and quality of life (QoL) in people with Parkinson’s disease (PwP) receiving either oral levodopa/carbidopa immediate-release (LD/CD-IR) tablets…
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