Objective: To explore perceptions of people with Parkinson’s disease and family carers about the use and impact of health and social care services, community and voluntary sector resources for the management of Parkinson’s disease in different European countries.
Background: Collaboration between different healthcare levels and different sectors is suggested to anticipate future health related complications. Multisectoral interventions could support and enhance the autonomy and quality of life of the person with Parkinson’s disease and their families.
Method: A cross-country qualitative exploratory study was conducted in Denmark, Norway, Spain and the United Kingdom. Semi-structured interviews were conducted between May and August 2020. A meta-ethnographic approach was used to analyse and synthesize cross-national findings.
Results: 47 people with Parkinson’s disease and 39 family carers were recruited. The themes emerged were the following: 1) Personalised care for needs, 2) Accessibility of different types of support systems, 3) collaboration of different key agents, and 4) self-management.
Conclusion: This study has provided an international perspective showing the relevance of moving towards an integrated and person-and-community-centred approach in the management of Parkinson’s disease in the community, involving different sectors such as the health, social, volunteer and community resources.
To cite this abstract in AMA style:
L. Ambrosio, MV. Navarta, D. Kunkel, A. Pedraz-Marcos, A. Palmar-Santos, A. Haahr, LB. Vester, LK. Bragstad, TL. Nielsen, NB. Kruse, EG. Hjelle, SB. Haavaag, MC. Portillo. Parkinson’s disease management in the community [abstract]. Mov Disord. 2023; 38 (suppl 1). https://www.mdsabstracts.org/abstract/parkinsons-disease-management-in-the-community/. Accessed May 9, 2025.« Back to 2023 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/parkinsons-disease-management-in-the-community/