Objective: To describe one interdisciplinary clinic designed to offer comprehensive care to patients with atypical parkinsonism syndromes, and to share the lessons learned which may promote replication of similar care models elsewhere. Additionally, we will provide an analysis of patient-reported benefits from receiving care in this specialty clinic assessed through satisfaction surveys.

Background: Atypical parkinsonism syndromes, including multiple system atrophy (MSA), progressive supranuclear palsy (PSP), and cortico-basal syndrome (CBS), are life-limiting neurogenerative disorders characterized by both motor and nonmotor symptoms. No single clinical discipline is equipped to address the complex needs of these patient populations, yet literature investigating specialized care practices for MSA, PSP and CBS is limited. These patients may benefit from receiving care from a multidisciplinary team of specialists, and formulation of individualized plans of care, as has been shown in patient-centered care approaches in other neurologic diseases.

Method: We performed a critical evaluation of our interdisciplinary clinic implementation and analysis of patient satisfaction surveys.

Results: 44 patients (22 male, 22 female) participated in the UNC atypical parkinsonism interdisciplinary clinic between November 2017 and December 2021. 20 patients had a diagnosis of MSA, 18 had a diagnosis of PSP, and six had a diagnosis of CBS. The clinic runs monthly. Each patient is assessed by physical, occupational, speech, and pelvic therapy, a movement disorders neurologist, and a clinical social worker, who also acts as the clinic coordinator. The team meets at the end of the clinic to discuss each case and compose an integrated plan of care.  Resulting comprehensive notes and recommendations are reviewed in detail with the patient and tailored referrals to therapies and resources are offered.  Feedback surveys indicate high levels of satisfaction with the clinic, and that patients are able to tolerate the current clinic duration.

Conclusion: Conclusions: Management of atypical parkinsonism syndromes using an interdisciplinary approach is possible and valuable for patients. Other clinic models, including alternative specialties, or different referral or coordination tactics, may also be beneficial and should be explored in order to increase comprehensive care offerings for this underserved patient population.

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MDS Abstracts - https://www.mdsabstracts.org/abstract/it-takes-a-village-an-interdisciplinary-care-model-for-atypical-parkinsonism/