Objective: To optimize efficacy and efficiency of the healthcare pathway (HCPW) for people with Parkinson’s disease (PwPD), using the political framework Article 51.

Background: Parkinson’s disease (PD) is a complex chronic condition, generating complex healthcare pathways. An efficient and effective communication and coordination between the different multiple involved actors is mandatory. A new French political framework allows stakeholder, to conceive a new way of HCPW organization and coordination to encourage its efficacy and efficiency, and to implement new devices. Actually, 20.000 people have PD in the North of France of the 200.000 in France, but only 25% are followed in the expert center for PD. How to meet their real needs?

Method: An inter professional bottom-up-SWOT-analysis of the existent HCPW was performed in April 2018 and in October 2019 through 6 focus groups, including all the involved stakeholders and patients with spouses. The following themes were discussed: communication, shared decision making, diagnosis announcement, HCPW in hospital, global organization, and new devices and providers. Strengths, Weaknesses, Opportunities and Threats were discussed.

Results: In total, 78 actors, involved in the HCPW, shared their opinion about its organization. Strenghts: existence of multiple institutions and professionals to support the PD-HCPW. Weaknesses: lack of time and communication. Threats: aging populations, increasing incidence of PD, ineffective and inefficient management of the costs, generated by the HCPW.

Conclusion: There is a need and an opportunity to encourage interprofessional teamwork and person-centered HCPW reorganization, based on the bottom-up-SWOT-analysis to meet the real needs for PwPD.

References: 1] M. Wanneveich et al. Projections of Prevalence, Lifetime Risk, and Life Expectancy of Parkinson’s Disease (2010-2030) in France Movement Disorders, Vol. 33, No. 9, 2018. [2] N.Carrière et al. Descriptive study of the parkinsonian population in the north of France: Epidemiological analysis and healthcare consumption. Revue Neurologique 173 (2017) 396–405. [3] Article 51 LFSS 2018. [Organisationnel innovations to transforme the health system.] https://solidarites-sante.gouv.fr

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