Objective: Map the literature on educational programs for patients with Parkinson’s disease and Deep Brain Stimulation, analysing the characteristics that the programmes have and the providers of the same

Background: Parkinson Disease (PD) is the second most common progressive neurodegenerative disease [1].  In addition to nonmotor symptoms such as cognitive decline, melancholy, anxiety, dysautonomia, and sleep difficulties, PD commonly manifests as tremor, bradykinesia, rigidity, and postural instability [2]. Deep Brain Stimulation was found to be effective for advanced Parkinson’s disease (PD). In fact, research has shown a significant clinical improvement in PD in terms of motor and non-motor features responsive to cardinal dopaminergic and quality of life which has been linked to a significant decrease in medication [3]

Method: A Scoping Review, according JBI guidelines, was used to explore the emerging and available knowledge on these research topics [4]. The authors searched PubMed, Scopus, CINAHL, Embase, Web of Science, and Google Scholar. Screening and abstraction were performed by two independent reviewers. Thematic analyses were conducted

Results: The study highlights the crucial role nurses play in the educational programs. The summarized literature emphasizes that the education programs is important in different stages of the treatment process, i.e. in the pre-operative phases to guide patients but also in the post-operatory phase for the management of the new element of the disease. The educational programs focus on psychosocial aspect but also a rehabilitative nature

Conclusion: The selected literature shows that education for patients with Parkinson and DBS is more important for the outcomes, but educational programs for this population are poor. The educational programs are important for the development of self-care in population with Parkinson Disease and Deep Brain Stimulation

References: [1] Khan, A. U., Akram, M., Daniyal, M., & Zainab, R. (2019). Awareness and current knowledge of
Parkinson’s disease: A neurodegenerative disorder. International Journal of Neuroscience, 129(1),
55–93. https://doi.org/10.1080/00207454.2018.1486837

[2] Hayes, M. T. (2019). Parkinson’s Disease and Parkinsonism. The American Journal of Medicine,
132(7), 802–807. https://doi.org/10.1016/j.amjmed.2019.03.001

[3] Rossi, M., Bruno, V., Arena, J., Cammarota, A., & Merello, M. (2018). Challenges in PD Patient
Management After DBS: A Pragmatic Review. MOVEMENT DISORDERS CLINICAL PRACTICE,
5(3), 246–254. https://doi.org/10.1002/mdc3.12592

[4] Peters, M. D. J., Marnie, C., Tricco, A. C., Pollock, D., Munn, Z., Alexander, L., McInerney, P.,
Godfrey, C. M., & Khalil, H. (2020). Updated methodological guidance for the conduct of scoping
reviews. JBI Evidence Synthesis, 18(10), 2119–2126. https://doi.org/10.11124/JBIES-20-00167

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MDS Abstracts - https://www.mdsabstracts.org/abstract/educational-programs-for-patients-with-parkinson-disease-and-deep-brain-stimulation-scoping-riview/