Objective: To evaluate the implementation of a novel pragmatic care delivery model for people living with Parkinson’s disease (PwP)

Background: The intrinsic complexity of care in PD requires different healthcare professionals to participate in the management of PwP, which challenges healthcare systems. There is a need to address gaps in care delivery and provide a more cost-effective pragmatic care within the healthcare systems of contemporary societies. It is not known what the most adequate multispecialty care model solution is to address the care needs of PwP.

Method: Multinational (6 centres) before and after feasibility study. Intervention: The iCARE-PD is a 4-month program delivered by a care integrator (iCARE-PD nurse) that provides integrated care, and promotes self-care, shared-decision making, and navigation of existing care resources in a pragmatic care network developed as part of the iCARE-PD site implementation. Primary objective: To determine study design feasibility. Secondary objectives: 1) To evaluate implementation feasibility of the iCARE-PD program, 2) To evaluate the processes related to the care delivery in iCARE-PD, 3) To evaluate the acceptability of iCARE-PD, and 4) To determine the change in key health outcomes and evaluate the efficiency/budgetary impact of iCARE-PD program.

Results: The iCARE-PD study began enrollment in Aug 2021. As of Mar 2023, 201 participants (target recruitment: 32-48 per center) were enrolled across study sites (Ottawa, Marburg, Prague, Lisboa, Dublin, Toulouse) stratified into Newly diagnosed PD (n=54, ≤2 years since diagnosis), Intermediate stage PD (n=43, 2-8 years since diagnosis), PD with complex care needs (n=104, ≥ 8years since diagnosis or H-Y≥ 3) groups. The mean age was 66.9+/-9.4 years, 31.8% (64/201) were females, 28.8% (58/201) had primary/secondary education. Three sites have completed the iCARE-PD study (Ottawa, Marburg, Prague) with study participant retention rate of 98.1 % (n=103/105. Primary objective).

Conclusion: The iCARE-PD model was successfully implemented across various national PD centers in Europe and Canada. The iCARE-PD study met recruitment goals and retention rate is promising. The completion of outcomes assessment will provide a unique perspective on the multinational multicultural implementation of a pragmatic care integration model for PD with key learnings for its transferability.

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MDS Abstracts - https://www.mdsabstracts.org/abstract/icare-pd-a-multinational-multicenter-feasibility-study-of-integrated-care-networks-in-parkinson-disease/