Objective: To encourage patients to prepare for a routine visit to the nurse, in order to obtain a more person-centered care and an opportunity to focus on what matters to the individual.

Background: In our experience, generic questions did not allow us to reach the main issue most important to the patient. The questions asked by the nurse did not always appear relevant to the patient and left too little time to offer for what really mattered to the person.
Studies on person centered care and the article ”Ready for prime-time” by Inger Ekman inspired us to make a change and possibly an improvement, an attempt to patient tailored visits more of benefit to the patient [1-7]. Our aim was to develop a more person-centered care and to allow patients at the Parkinson unit to gain control of the content of the visit by using a pre distributed form that concerns the most common areas and symptoms experienced by this group.
Some of our patients had earlier described that the purpose of the visit to the nurse was unclear. By means of the form they were encouraged to ponder about the questions/areas of difficulty at home in calm, quiet surroundings, also including spouses/partners to partake in description of/visualizing the problem areas of most importance.

Method: All patients scheduled for a yearly routine visit to the nurse were sent a form attached to the booking confirmation with instructions to fill out at home and bring to the clinic. The form was tried out on a couple of patients beforehand. Minor adjustments were made before sending it out routinely [9].

Results: Both patients and partners have responded well to this. Topics that have rarely come to surface before are now being actualized. It is also a means of visualizing for your next of kin the complexity of PD and the broad variety of symptoms than can be manifested.

Conclusion: Both patients and partners appreciate this opportunity to prepare for the visit and to focus on what matters to them. This method will be evaluated by students at Linköping University through interviews.

This abstract has already been presented in The International Forum on Quality and Safety in Healthcare, Glasgow, Scotland, 03/27/2019, as poster presentation [8].

References: 1. Ekman I, Swedberg K, Taft C, Lindseth A, Norberg A, Brink E, et al. Person-centered care – Ready for prime time. Eur J Cardiovasc Nurs. 2011 Dec;10(4):248-51. doi: 10.1016 2. Buetow S, Martinez-Martin P, Hirsch M, and Okun M. Beyond patient-centered care : person-centered care for Parkinson’s disease. Npj Parkinson’s disease. 2016 3. Kebede, S. Ask patients “what matters to you?” rather than “What’s the matter?” BMJ 2016; 354: i4045 doi: 10.1136/bmj.i4045 4. Dauwerse L, Hendrikx A, Schipper K, Struiksma C, Abma T. Quality of life of patients with Parkinson’s disease. Brain Injury, 2014; 28(10): 1342-1352 5. Socialstyrelsen. Nationella riktlinjer för vård vid Multipel skleros och Parkinsons sjukdom. 2016 6. Graneheim, U.H. & Lundman, B. (2004) Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today, 24(2), 105-12. 7. Polit, D. F., & Beck, C. T. (2017). Nursing research: generating and assessing evidence for nursing practice (10th ed). Philadelphia: Wolters Kluwer. 8. F. Nilsson, L. Öberg, Creating Moments that matters, The International Forum on Quality and Safety in Healthcare, Glasgow, Scotland, 03/27/2019-03/29/2019 9. Figure 1

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